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hi everyone! been awile--so many changes. a year ago, xmas was festive, i was strong enough to nurse my mother back to health and hope and strength were plenty. since i have been diagnosed with als, lost voice, have hands that hardly work, had a peg put in for meds and hydration and, have...

My hands don't work well, speech just about gone & I walk like Frankenstein. My balance isn't so good, I have to be careful of swallowing certain foods and I have muscle weakness? Somedays, when the stress of family and spousal problems is too much, I ask God "why not take me now, please?" I...

Went to Columbia and was diagnosed w/ ALS. They did blood, EMG, Nerve Conduction and some deep cellular MRI. Dr. Gordon said minimal nerve damage & minimal progression. But my speech is almost gone, my hands are weak, my walking is unstable, foot drop, twitching, fatigue. How do I cope when...

Hi everyone! Sorry I left for a while; it's been so hard. My family, for some reason (something to do with my husband), have been keeping their distance from me...I've been struggling to regain my emotional strength because of it. All my life I've been there for all of them; nursed my father...

On Wednesday, 4/12/07, I will be going to Columbia University to see a specialist on a second opinion. My fear is 1) he will only look at tests I've had done and give a diagnosed., and 2) he won't consider other possibilities. Here is where I'm at now... slowed speech, left hand finger-tip...

Hi! I want to thank you all for accepting me so unconditionally into this group. You are all kind, wonderful, strong people. I don't know about you, but, I can't spend all my time thinking of the medical end of things...it would only make me loonier than I already am. So, I was wondering...

Hi Friends! Who has read the book or seen the movie "The Secret"? If you haven't, I strongly suggest you do. The basic principle is the Law of Attraction. I'm sure some may not believe in this stuff and some may. For me, I see something truly wonderful about being positive and having...

Dear Friends: I was wondering, what strategies are you using to fight (i.e. vitamens, exercise, therapies, medicines, alternatives?)....and what have you found to work well for you? I can seem to get my "game plan" in action; so, if I had an idea of what others were doing, it might help...

Dear Friends: I'm confused about testing for ALS. From what I've been reading thru the posts, so many have gone through tests I've never heard of. My Neurodiagnostic did: Speech: Strangled quality Cranial Nerves: Facies (what's that? poop? ) are symmetrical. Easily elicited gag...

Dear Friends: While writing to Annmarie, it occurred to me that it might be helpful to hear what you think about my diagnosis (opinion #1....opinion #2 appt. in 3 weeks): "THIS HISTORY, CLINICAL FINDINGS, AND SUPPORTIVE DATA ARE MOST CONSISTENT WITH THE DIAGNOSIS OF AMYOTROPHIC LATERAL...