This is some very fascinating research. While I'm not medically qualified to make this statement, I'll just throw it out there that this could be something to explore in unusual / atypical symptom presentations, especially in those younger than the average age for MNDs. Personally, I've been...
Apparently the link to this case study that I shared in my main thread got stripped out during moderation, so I'll try posting it here in a new thread. If you still can't access it, PM me and I'll send it to you.
Early Respiratory Insufficiency in the ALS Patient
Thanks,
Luke
This article is about another neuromuscular disease but it sounds similar to what people with MNDs experience- progressive swallowing problems due to weakened bulbar muscles. Just wondering, if there are surgical options that could give people more time with the ability to swallow, why don't we...
All things considered, it could be worse, but I'm stressing out. I lost my job. I have been here nine years and now have 60 days to figure out what to do next. My position was eliminated, but there's another very similar one posted so I will be going for that. This normally wouldn't seem so...
I'm hardly ready to make this kind of post, but I can't deny it any longer - the foot drop is worsening by the month and I'm really starting to feel it now. My walk has turned into more of a high-stepping march and it's really wearing me out. No tripping and falling yet, but I don't think I...
Orthodox Rabbi May be First ALS Patient Cured by Israeli Drug | Jewish & Israel News Algemeiner.com
Anyone seen this article yet? It's probably too soon to draw major conclusions about this treatment, but this seems like exciting news. Hoping those more savvy than I will weigh in to shed...
Here's another treatable syndrome to consider if you've got twitches, progressive weakness, swallowing problems, sensory issues, etc. Case #6 was especially interesting to me. From what I've just read on Wikipedia, coeliac disease itself is rare, but certainly more prevalent than MND, and it...
Hi,
I took a little break from posting but, as requested, thought I'd drop in for an update. I'd typed out one of my characteristically lengthy posts but deleted it in the hopes I can get the job done in a much shorter post. :) No promises, but it will be a fun challenge. Here we go.
Recap...
eating
emg
family
fatigue
fear
food
keyboard
life
mobility
pain
speech
story
swallowing
symptoms
test
tongue
trouble swallowing
update
weakness
work
worry
wrong
Hey folks,
I'll share the latest update on my health and then I think it's time to say goodbye to you all for now. I found this forum because of my anxiety over symptoms, and see so many carbon copies of my first thread here, in the form of other freaked-out Google surfers. I don't think I...
anxiety
back
bipap
clinic
data
diaphram
fingers
fvc
goodbye
health
helpful
muscle weakness
muscles
night
problem
sleep
swallow
symptoms
tests
update
weakness