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Hi Everyone.......haven't posted in a while. Was diagnosed 11/06. I want to thank you all for helping me out when I went on Bipap, Cough Assist, etc. I was so terrified of everything. Went to ALS clinic last week and got upsetting news. It is time to go on Hospice. It felt like I got my...

Hi Everyone.......Just wanted to thank all who encouraged me when I had to start Bipap a few weeks ago. Getting used to it little by little. Now my RT has ordered me the Cough Assist machine which I begin tomorrow morning. My husband will have to hold the mask on while the RT throws the...

:confused: Hi All, I promised to report back on my progress with the Bipap. Even with 1 mg.of ativan I was still anxious but slept three hours the first night, four the next and five last night. Now, pulmonary doctor says I can't use ativan because it relaxes the muscles too much. So he...

Hi Guys,.....I have reached the point of needing a Bipap. Respiratory therapist was here today with the equipment. As I am claustrophobic I opted for the nose pillows and was fine until he told me I had to keep my mouth closed. Have been a mouth breather for years. Every time I closed my...

:-D Hi Guys,........back again with another issue which makes me extremely anxious especially when I'm alone at home. I seem to have an overabundance of phlegm which causes me to cough until I am exhausted. Sometimes it seems to get stuck and that's when the panic sets in. I use Mucinex DM...

Hi Guys,,,,,,what Is Going On. One Day My Speech Is Halfway Decent And The Next I Can Hardly Get The Words Out Of My Mouth. I Find It Is Much Clearer If I Turn The Volume Up And I Speak More Forcefully. But This Can Get Embarrassing. Have Any Of You Had This Problem. Does Fatigue And Stress...

Hi All,.....After a year of symptoms I have finally received the diagnosis I so feared-ALS. My legs are very weak and I sometimes have slurring and hesitant speech. Also have problems with fine motor coordination in left hand but that's it so far. There are no support groups in my location...