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No, Pat, I have decided not to have a vent and won't change my mind about it. I have given it long and serious thought. I would rather go Home. Sharon

Hi Jeanne,.......What a wonderful offer to make. I would be delighted to have the CD and it would be special that it gave another ALS patient such comfort. I will send you my address. I would feel honored. Sharon

Hi Pat.......I do not have a peg. I think my lungs are too bad .....45%. I can swallow fine. Just had a tuna on rye. Also take Ensure once a day, sometimes twice. Sharon

Hi.......to all of my friends who replied to my post a million thanks. Sharon

Hi Pat,......yes, Hospice is coming to my home and I feel with each passing day that I need it. I have lost 42 pounds but try to eat healthy meals. I jusrt don't have an appetite anymore. I also have "head drop" and my diaphragm is very weak. I will continue to fight, however and try to...

Hi Everyone.......haven't posted in a while. Was diagnosed 11/06. I want to thank you all for helping me out when I went on Bipap, Cough Assist, etc. I was so terrified of everything. Went to ALS clinic last week and got upsetting news. It is time to go on Hospice. It felt like I got my...

Hi Candi,.......I started with shoulder and neck weakness on the right side about a month ago. Now my head drops to the right all the time. It takes so much energy to keep my head upright and becomes very painful. My daughter brought me a cervical collar which I wear for a little relief...

Hi,....I, too, use the Mystic Swift nasal mask. If not for the people on this forum I probably would have chucked it long ago. I take xanax one hour before bedtime. Some nights I make it all the way through the night and the next day feel great. Other nights I have difficulty and make it...

Hi Rhonda,.....last summer my right foot would be swollen and purple by the end of the day. I was sent to a doctor to have the circulation in my legs checked. Also had an ultra sound in case of blood clot. Both tests were negartive. This summer both feet swell and turn purple. Try and keep...

Thick mucus Hi.....I, too, have had problems with phlegm and mucus. I tried the coke thing which helps a little, Also take Robitussin DM and Mucinex DM. Also have a nebulizer which I use three times a day and a Cough Assist machine I use morning and night. My husband also uses his cupped...