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I have had an absolutely horrible time this last month. They denied five different items on my wheelchair order, I have a pinced nerve in L5 and a soft tissue tumor in my right ankle . I finally got my sister to finish my shopping with gift cards and I am down to 2 fingers on each hand and my...

Per his nephew Gareth on facebook Chris left us moday afternoon England time Nell

his facebook acct is closed anyone heard nell

This is not a whine or complaint It a stupid observation As a newbie, I understand that everyone is different and no one knows for sure what will develop next, BUT as I am losing arm use and worried what was next I have no idea what is next for sure. I didn't want to use Dr. google, and...

Just back from Chicago and my second opinion "I cant say it is and I cant say it isnt, but because I know of no other condition with these symptoms, It is ALS and see you in Aug if you wish to drive up to Chicago again" Well, I am not in the dark anymore. Listening to the steps others have...

I am so sorry for my outbursts yesterday. It was totally unfair to take my frustations and anger (yes anger) out on all of you. I know you know what I am going through and I just need to deal with it. Besides whining time is over thanks Nell

Question: I know that everyone is different, but I need some help understanding whats happening - I lost use of most of my right shoulder - - can't raise it up or lift any weight, can't hit mouth with food, but right hand works - wrist is sore and I do the exercises and fingers seem to work...

Most confusing In Nov I started missing my mouth when I ate, then couldn't lift milk carton and by Dec I could not reach garage opener- had to move it to left side- Fam Dr says its a frozen shoulder and that we should get an MRI of my head and emg on right arm. Scan shows nothing, emg showed...