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  • Users: Anja
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  1. Anja

    Here for you!

    Hi my wonderful friends! I am very happy i DON'T have ALS! As i know this now I want to tell you was a nurse before i got ill. During the diagnoses process i didn't want to share this, i needed energy for myself and of course still do. BUT I want to be there for GENERAL medical questions, I am...
  2. Anja

    might or might not be MMN

    Hi dear proplr, 4 Many months i was in process of being diagnosed with ALS, thank God it wasn't that... But now i have questions, as during the investigations signs of MMN were there, but no conj block and blood work okay, does this exclude MMN? Docters suspected it and now they don't anymore...
  3. Anja

    Good and bad news!

    Hi dear friends, Sorry i was gone 4 so long again, a friend of me is dying, so that is why :( I had my diagnose today: I have NO ALS! That is such great news! :D But I DO have a neuromusculair disease only they have no clue which on and/or what the cause is... :roll: :( :?: So I am...
  4. Anja

    About fears

    This I want to share, with all respect to people who come here being afraid. I can and DO relate to a certain point. I might have ALS, of course i'm scared about it, and i do look 4 other causes. So should you... Forget about this terrible thing unless your neurologist told you otherwise... i...
  5. Anja

    rant rant grrrrrrrr

    Just want to say GRRRRRRRR.... shout etc. I feel angry & sad now and due to not working left hand can't express what i want to, 1 hand typing sucks big time! :cry: My new neuro from university hospital wanted me to have the emg earlier, but today i was called it is impossible, so have to wait...
  6. Anja

    Exams, updates & questions

    Hi there, Finally I have a first appointment for the "serious exams" at the university hospital (see my thread at new members: https://www.alsforums.com/forum/welcome-new-members-say-hello/18551-hi-netherlands-holland.html ) I have an appointment at april 20, so have to wait many weeks, but at...
  7. Anja

    Hi from the netherlands/holland

    Hi there, Short post because i can only type with 1 hand, my left hand is paralysed. My name is Anja and i am in the diagnoses process. 8 months ago i had and still have a dropfoot, since 1 week ago my left hand stopped doing what it's supposed to do. Lost lots of (muscle)weight. Used to be a...
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