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Those who are undiagnosed may have one open thread on the CIBALS subforum. They may not post elsewhere - not on other CIBALS threads and not in the main subforum. If a thread has closed due to disuse and the CIBALS has not been told not to post they may start another thread. These rules have not...

As most of you know there was a European trial of TUDCA alone ( it is a component of Relyvrio). Topline results were negative. Announcement of top-line results - TUDCA ALS

https://www.amylyx.com/news/amylyx-pharmaceuticals-announces-topline-results-from-global-phase-3-phoenix-trial-of-amx0035-in-als As you know it was approved after a phase 2 on that data and also ole. It wasn’t conditional but there was an exchange during the ADCOMM where it was asked what if...

My clinic offered them before covid as a beta project. My sister used them for the last year of her life. I have mostly used them since covid. Medicare coverage is due to eire at the end of the year. Hoping it gets exptended again. I already wrote to my Congresspeople

This video was posted on another forum and thought it really interesting

I thought this page gives a lot of sensible advice ALS Mental Health Also this on quality of life Quality of Life with ALS

https://us06web.zoom.us/webinar/register/WN_GeVdLf1fSLKZPZjGAI-Osw?os=ipad#/registration

This is the edaravone study using a formulation developed in Europe. It definitely raises questions about radicava and I encourage people to discuss this with their neurologist. I don’t take radicava and never thought it worth pursuing but i am almost as different from the Japanese trail...

To all who celebrate and a peaceful day to all

And happy Thursday to those who don’t celebrate.