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  1. Poet Chistopher Robin

    update from chris the poet

    I am terminally ill and dying I have COPD meaning my lungs are gone, also MND motor neurone disease which is killing me daily plus, a small cancer growth in my left back plus a right front hernia plus a broken right foot After celebrating 35 years of marriage two weeks ago my wife has thrown me...
  2. Poet Chistopher Robin

    Peg fitted last week

    The peg feed op went ahead no problem took all of just five minutes, no sore throat, although a week later and it’s still weeping as still also very sore too, Currently I take only my meds and energy boosts down it, but with just my left hand it is impossible for me to do alone The ALS stepped...
  3. Poet Chistopher Robin

    Yet more problems for me

    You would not believe what happened to me today, was sitting in the wheel chair at, St Oswald’s day centre main entrance, and just waiting the bus back home, when the phone got a message. Lifted it out my pocket and managed to drop it under the damn wheel chair. In moving the chair backwards I...
  4. Poet Chistopher Robin

    The problems just keep piling up for me and my wife

    I’ve actually got copd, which means my lungs are gone, als, plus a small cancer growth in my back at the left and a hernia on my right, then my sister in law is dying from cancer, mother in law was cremated just six months back yet we’ve had my wife’s alcoholic brother in to this actual...
  5. Poet Chistopher Robin

    Dry mouth as throat in bed help please

    How can you stop your mouth as throat from terribly drying up, the instant your head hits the pillow. I’ve got the saliva spray as also the salivix gums but both are no good when asleep I know its part of the ALS but it’s also one of the biggest worries
  6. Poet Chistopher Robin

    Respect folk with ALS in the forum here please

    We all need to be very careful, cautious in fact to what we say to other forum members, many of us are possibly a great deal ill and progressing a lot more rapidly than our text may ever relay or even appear to show Look at me the other week arguing with Richard over a misunderstanding on my...
  7. Poet Chistopher Robin

    Peg feed advice required please

    What they say about having a peg feed sooner rather than later I would say is indeed very valid for any one with als. I am now booked in for one in the 22nd this month, but have two very great fears, one being i will likely be to weak. Two being the camera down my throat, the last time caused...
  8. Poet Chistopher Robin

    When we have each individually had enough

    This below is all true and has took place since 2009 and it hopefully shows or reflects the resilience of each of us as humans, (although the people where I originate from are luckily a very tough hardy breed) this also clearly reflects the decision by God as to when we have each individually...
  9. Poet Chistopher Robin

    Heaven or Hell for this dying man

    Heaven or Hell for this dying man If I deserve to go to heaven Then my Lord God so be it If instead I am destined for hell Then I deserve this Lord I admit Satan has taunted and teased me Every final day of my life Even though that I am dying He persists in causing me strife It may be the...
  10. Poet Chistopher Robin

    Dynawrite is good and light

    They swopped my Dynavox for something called a dynawrite, like a small keyboard with a little screen on the top. Made by the same people has a good number of male/female voices on board too Its a great deal lighter and works very well, The price is a vast difference too
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