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The only rude and smug remarks here are coming from you. I tried to reply to my last thread and keep everything in one place, because you would have griped at me if I didn't, I stayed off this site for nearly a month, because you would have griped at me if I didn't. I just had a simple follow up...

Tried to reply to my last thread to keep all in one place, but it has been closed. I have done a good job staying off this site for the past few weeks. But these damn symptoms won't go away! Have had 2 EMGs both were "normal" although the second one picked up rare MAUPs. I haven't been able...

A quick word of caution...benzodiazepines (xanax, ativan, clonazepam, valium etc.) that are prescribed for anxiety/sleep usually suppress respiration while you are asleep. If ALS has already begun effecting your breathing muscles, benzodiazepines will only exacerbate your nocturnal breathing...

My tongue twitching is not constant. Although you will see a few of them if i hold my mouth open and my tongue still for 10 seconds or so. I've tried to move my tongue ever so slightly in my mouth to see if the twitches are actually just voluntary movements, but I have been unable to recreate...

Quick question. What does tongue twitching look like to those of you that have it and have MND. When I look at my tongue (at rest), it looks completely still, and then suddenly one small area will sink in and right back out very quickly. looks like rain drops hitting a flat pond. They are very...

ALS doctor is monitoring me. Said at this point, still unlikely, but my symptoms were, "noteworthy." They documented weakness in my right pinky finger, with some atrophy on right side of palm (ulnar nerve), and pointed out some more atrophy up by my elbow on the ulnar nerve side. She said it is...

Hi Greg. I have read your story and am truly sorry for Your diagnosis. The fact that you are a father makes it all the much worse. Like you, I am also in my 20s and am currently going through the ALS horror. I have not been officially diagnosed yet, and I hope never to be, but was wondering if...

So I went and had my video esophogram today and the SP noted my swallowing muscles look fine, but that my soft palate has nearly collapsed and does not raise up very much at all when i say, "Ahhh." She believes i was mistaking swallowing problems for a collapsed soft palate - as it has...

Hi circleK You and I have strikingly similar symptoms at exactly the same time. I too am waiting to see an ALs clinic next Wednesday to rule out ALs for sure. I have also been told by several neuros and everyone on this site that I am crazy. I know it is hard to accept, but try to just relax...

see, you just gotta stir the fire a little bit and the answers start flowing. THANK YOU ALL! I didn't mean to piss anyone off with my questions. I'm just scared. i'm going to try and stay off this site now until I know more. it isnt healthy. will let you know what the doctors say. regards