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by the way i am trying to give the machine i bought for her which she only used a couple of times, its a suction machine, it cost me like 400.00 but i dont want to sell it, if you know anyone that needs one i have one. she hated it she never wanted to use it, but it helped with her saliva and i...

Hi Kim, noce to hear from you i havent posted anything but i do come and read how everyone is doing, im glad your dad is maintaining. My holidays have not been very good, i miss my mom soo much, but its like you said we need to keep up for our kids sake, even though my daughter is not doing very...

Hi Kim - wow thats great news about your dad, i wish there was something like that for my mom...i think about her everyday...and now with the Holidays its not good at all, but i need to move forward my daughter is getting married in november 2014, she is very ecxited as so am i, i know my mom...

Hi Kim C - My mom was diagnosed with ALS in September 2011, she passed away this year on January 16...she lived 1 year and 4 months after her diagnose...i was her caregiver with alot of help from her to siblings that she had...she was diagnosed with Bulbar als, everything happened so quickly...

Lussybaby, this is very weird to me, i dont think its appropriate for me to send you anything to your personal email, this site is for people that have real issues that have or have loved ones diagnosed with this horrible disease... does anyone know who this lussybaby is, and should i report her...

Hi Kim...nice to hear from you, its awesome your dad is able to get a mini vacation..we are going to key west for the 4th of July and watch the fireworks over there, thats where we were last year with my mom, she even went in the boat for a ride...she wasnt able to speak but i know she was...

hi Samsmom, my mom passed in january 2013...i miss her terribly, and i always had the biggest issues with the Bipap, she never wanted to wear it, she hated it, and honestly i would try at first, but when i saw she was so uncomfortable with it after she yanked it off her face i wouldnt fight with...