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  1. A

    Final stages and lingering

    My mom is in her final days and quite possibly her final hours now. She has not eaten anything in 2 weeks and 4 days, stopped drinking 5 days ago, and since then has only had a few bites of crushed ice each day. She has all of the typical signs of end of life - the darkened urine, dark blotches...
    • almondjoy
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    • als bed breathing caregiver dad decline diagnosis eating end of life eyes family hope hours ice last days life nurses oxygen pressure progression reading sad sleep stages stress voice wheelchair
    • Replies: 47
    • Forum: In memory of
  2. A

    In your experience, how long?

    I am 25 and the caregiver for my mom, who is 56 and was diagnosed with ALS in September 2009. She is completely unable to move any part of her body from her chest down. She still has very limited movement of her hands, but her index fingers are the only ones that she can really control the...
    • almondjoy
    • Thread
    • als caregiver diagnosed eating end of life feeding feeding tube fingers ice life movement phlegm sad swallowing treatment
    • Replies: 8
    • Forum: Current caregivers
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