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I have bulbar ALS and have been noticing that I get thick mucous that feels like it sits at the back if my tongue/throat. It seems to be worsening. Is this typical as the muscles in the mouth weaken?

I had genetic testing and showed a variant on ALS2 gene. My neurologist doesn't think this variant is playing a role in my disease, since it is usually shown in juvenile als. Does anyone know anything about this gene?

I was diagnosed in Dec 2016 and I applied for social security right away. I received a denial letter already stating "Though you do have discomfort, the evidence shows you are still ale to move about and to use your arms, hands and legs in a satisfactory manner." and "your condition results in...

I just uploaded my profile picture. Why does it not show next to my name, like it does for others?

I am just wondering....is it normal, early on in the disease to feel, well, normal? Somedays I get up and feel so normal (except of course for my slurring) and have to stop and ask myself, do I really have ALS? I guess I don't know what to feel, or expect. I am just sort of grateful, that I...

My speech therapist gave me information on Message Banking at messagebanking.com so that I can preserve phrases of my speech to use later, since my speech is changing. The website doesn't seem to be working. Has anyone else tried to use this website? Any ideas on how to access this so I can...

I received my official diagnosis of ALS on 12/16/16. I knew in my mind that I had it, but was continuing to hope and pray for an alternate diagnosis. I've had some minor progression in my speech articulation and some vocal quality (raspy) changes in addition to EMG findings on my tongue and...

I joined this forum in 2011, when my father was diagnosed. When I started experiencing symptoms of my own, I came back to this forum and set up another account. I have since reverted to my original account, since I remember it. Is it possible to delete the second account, so that I have only...

I've been experiencing slurred speech for about a year. In Mar I saw a neurologist and in April I had a speech eval and emg that were normal. In July my neuro saw tongue fasciculation and ordered genetic testing, which showed variant on ALS2 gene. In august I repeated the speech and was...

My name is Kelly and I am 47 years old. My father passed away from bulbar onset ALS in February 2012, after a 4 month battle. About a year ago, I began noticing slight slurring of my words. It wasn't all the time, so I dismissed it. About Jan or Feb of 2016 I began noticing that my...