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Cutting-edge clinical trial offers hope to those with ALS | Detroit Free Press | freep.com

Dad passed this early this morning. My mom, sister, and I were all there at his bedside. It was truly a blessing as the last 24 hours were not good. He would not have wanted to continue like that. The morphine and anti-anxiety meds made the last few hours as peaceful as possible for him. The...

Our ALS clinic nurse came to visit us before we left the hospital. No good news at all, I'm afraid. She said it's time to just make him comfortable.

When I joined here a few months ago, I read about a communication device invented by a PALS. It was a simple book of words/colors with a hole in the middle of the page so CALS could see what the PALS were looking at. Wow, I know I explained that badly, but can't think of a better way. Anyway...

Ugh - 'nuf said :(

A friend sent me a message on FB the other day asking if my family would like some chicken noodle soup. She said she had made a lot and would bring some by if I wanted. I almost said 'no, thanks, don't go to the trouble', knowing that she has tons going on in her life, too, and we didn't...

it looks like the last one is closed. Constipation has been an issue since we started this thing. Now i've added the term, 'urinary retention', to my vocabulary. Actually in the hospital having all sorts of bad things ruled out for him. Looks like we're going to come back to just plain old...

VA came through big time today. This morning an "Easy Air" mattress was delivered. We're still figuring out the settings, but I think Dad is very happy with it. This evening a Permamobil rep came by to measure Dad for his pwc. Sounds like it will have everything the ALS clinic requested and...

Dad started Riluzole last week and isn't feeling well. He wants to try it a bit longer and see if he feels better, but meanwhile, he's losing his appetite :( Hoping it turns around soon.

Big week... Kiwanis guys build a ramp (posing here with their handiwork) and Project Freedom guys installed an overhead lift system in the bedroom (demonstrating it for us here, lol)