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  • Users: mummy24
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  1. M

    Update and hip weakness

    Hi all, not been on here for a while as had a lot on my mind! If you see my previous post a few months back on the als forum, that thread is now closed. Still trying to get help for ongoing neuro symptoms- see previous threads. Have been trying to get on with my life although the discomfort...
  2. M

    Now questioning my neuro problems...

    Hi all. I am a young female who has been having on going neuro problems which now seem to be getting worse. I presented to my neurologist a few years back with spastic parapasesis. They were concerned as I was told my neuro exam was very abnormal. I have spasticity and weakness, muscle wasting...
  3. M

    update. normalish emg etc.

    I posted a few threads a while ago as I am in the process of looking for a diagnosis. My neurologist thought from the start that my condition is likely genetic and that is still the case. They thought it likely that I have a rare type of charcot Marie tooth or a rare type of hereditary spastic...
  4. M

    Undiagnosed ....familial als?

    Hi. Ive posted on the PLS forum but have realised i dont seen to fit in there with my symptoms. I have been told that I have a neurological condition after being referred to a neurologist and genetic dept. I have upper motor neuron signs including brisk reflexes and spasticity in my...
  5. M

    update

    Hi all...i previously posted a thread as i was concerned i had pls. I have had further tests, an MRI and appointments with a geneticist. They have determind that i have a genetic condition and not pls or progressive ms....they have given me a likely diagnosis of HSP, they also said there is...
  6. M

    not good. im scared.

    Hi all. This is hard for me...its scary to realise that I may have pls. Im still in denial that something is wrong...i only have mild issues with walking, its not that bad. I suspected a problem but hoped it was in my head, i could not believe i would have a problem as im only 24 years...
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