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Hi all, not been on here for a while as had a lot on my mind! If you see my previous post a few months back on the als forum, that thread is now closed. Still trying to get help for ongoing neuro symptoms- see previous threads. Have been trying to get on with my life although the discomfort...

Hi SUzannah, you posted on my thread a while ago and tried to reply but the thread is closed. Interested to hear that we have the same symptoms but with no diagnosis. How are you doing? Sorry I have taken so long to get in touch, have a lot on my mind.

Re: Does anyone here have feet like mine? Upper limb symptoms are clumsy hands, dropping things, cramps if I touch cold things, weird arm and wrist postures (noticed by others before I even noticed.) left index finger starting to claw I think.

Does anyone have feet like mine? Hi all, posted on als forum and everyone said it doesn't sound like ALS but maybe PLS. I obviously have something wrong with me and neuro and geneticist originally thought Freidrichs ataxia or a complicated hereditary spastic paraplegia....but... Had full gene...

If it wasn't for my latest progression I would still be in denial , damn you neuro symptoms �� Feel bad for taking up your time with my stupid problems☹️All the best to all you lovely people xx

THank you, Wendy :) I very much hope it is something else too. All I have been told all along is that there is 'something going on' but no straight answer. I'm trying to be pushy now and have just booked an appointment with my gp, With the hope that I can get referred to a specialist centre...

But yeap I'm very relieved if it doesn't seem to be presenting like Als. To be honest I think my doctors have been puzzled as they have described my presentation as 'unusual'. I think the fact that all my genetic tests have been negative has now made me think of non genetic causes such as...

Thanks Lenore. I have NOT had an EMG but had a nerve conduction study, I think this is different, am I correct? (all they said about the ncs results was it fitted in with their diagnosis of upper motor neuron damage and something about anterior horn damage and repeat f waves.?!)