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  1. P

    diaphragm pacer

    HI EVERYONE. MY BROTHER WAS DX IN OCT. 2012 WITH BULBAR ONSET ALS. HIS BREATHING HAS GONE DOWN,I WAS WONDERING IF ANYONE HAD THE DIAPHRAGM PACER INSERTED.HOW ARE YOU DOING WITH IT/was your breathing low at the time of surgery? what is the whole process of testing like?DO YOU THINK IT IS WORTH...
  2. P

    dex triaL AND SOME QUESTIONS

    Hi everyone, i have a couple of questions?well maybe 3 questions. My brother is in the process of being diagnosed for als.neuros are 99% sure. He has bulbar symptoms.they say it could pbp.what is the prognosis for pbp? Has anyone heard anything else about the cancellation of the dex...
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