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  1. B

    about his stem cell transplant.

    I am not sure if he waited to long or if it just doesnt work. Because it has been longer than dr.steenblock said it would be to see results and nothing has changed. At this point he cant believe how much he is sleeping . Going on year 6 with pbp. And its really taking its toll on his body. And...
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    my daddy has pbp

    'Why I chose my dad' HI ….My name is Tallon. And with my mommy’s' help I'm here to tell you a little bit about my hero- my daddy. All of this began one day in heaven. I live in Madera but my hometown is heaven. I was walking with God when he took my face in his hands and asked me to go and Be...
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    stem cell

    It's been a very long time since I visited here . Hope everyone is as well as can be expected. We are leaving to have him go thru stem cell therapy on monday. Does anyone have any experience with this type of therapy for pbp? Or any input or opinions? It's a very costly procedure. And he...
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    Hitt clinic in mexico

    Does anybody have any personal experience with the clinic in mexico?
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    4 years plus

    He has been told that he is four years or more into Pbp ..we see a great dr. At this clinic in fresno. He still works everyday out here on our pistachio orchard. The Dr is amazed by his strength that he still has. Got the tube last month. He still feels its the beginning to the end. But it has...
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    caregiver

    someone mentioned to me once that i should visit the caregivers forum but i cant locate its location anyone know?:-?
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    awful taste in his mouth

    hi we have another question .. he askked me to mention that he has an awful taste he has been tasting for about 2 years. does anyone else taste something like metal ?we thought that it may have been anaglam filling but he had them removed and the taste is still there. i was hoping that the...
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    help pros and cons of the g tube for pbp

    hi i am back with another question? i am with a man that is my true love only tonight he made me very mad. he has been eating purieed food and liquids dont even make it down. he is choking even on the food we put threw the kitchen ninja. so again tonight i brought it up once more about the...
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    pbp what to expect in late stages

    can anyone please give me a clue as to the late stages of pbp? as far as being confind to a wheelchair/bed does this happen gradually or will he wake up one day and be unable to move? :sad: anything that anyone can tell me about the mid to late stages would be very helpfull thank you
  10. B

    help8

    I need someone to talk to about Pbp
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