Search results for query: *

  1. H

    Bipap Question

    It's the new one that they have out now. It has 2 parts at the back .1goes on top of head and other pushes down behind head. The chin part I put a folded facecloth under and pull it up under lower lip.
  2. H

    Canadian Connections

    I am in a slower progression thankfully . But I do need to continue the struggle . It is very important for me to always do physio stretches range of motion and hold my breath while doing some arm exercises to stretch and maintain lung strength . Since my problem is a dead area between my brain...
  3. H

    Canadian Connections

    keep in touch
  4. H

    Bipap Question

    Been on bipap for about 12 years now. Humidity set at about 3 out of 4 on machine . Use nasal pillow and chin strap . We put a folded faceclothe under the chin part and pull this part up under the lower lip. It needs to pull in on lip. Have to keep lips closed to prevent air escaping . Otherwise...
  5. H

    Canadian Connections

    Hi, my name is Doug . I live 8 mi NW of Ponoka, Alberta . I was diagnosed January 8,2001 and given 2-5 yrs to live.. Have been quadriplegic for years now but able to push a bit with my arms . Voice is very quiet most times and use the bipap nasal pillow to assist lots of times . Arm wrestle...
  6. H

    Doctors suggested my dad to get a PEG

    It was the ALS Society. They worried that I would progress the symptoms .
  7. H

    Doctors suggested my dad to get a PEG

    I am interested to here that your father has mostly UMN ALS. I was diagnosed January 8, 2001 with ALS. After couple years I tried exercise in a warm pool against the recommendations. Since then I was told that I had UMN ALS and exercise what muscles I have left is very important. At 2 years I...
  8. H

    Exercise as a risk factor for C9 ALS

    I do not have familial ALS to be clear but I thought you might be interested in my story. I was diagnosed with ALS back on Jan 8, 2001. At that time they gave me 2-5 years to live. After about 2 years I progressed to a quadriplegic. I did notice that I still could adduct my legs and my arms...
  9. H

    Red light therapy

    Does anyone have experience with laser therapy? Someone is wanting to try red light treatment on me.
  10. H

    My Doctor says I have PLS

    Thanks Al. Yes I am ever so thankful this disease has affected me the way it has. With full blown ALS you haven't a chance to do anything about it. I know. I've seen so many of my friends wither away before my eyes, and I've had the luxury of being able to exercise and maintain myself. I thank...
Back
Top