Search results for query: *

Thank you all for your responses! I appreciate you taking the time to post. I'm hopeful it's not too late for Don but based on the information you all provided, I will be encouraging him to move forward with the PEG tube ASAP. God Bless you all!

Thanks. I'll wait it out :-)

What does "went to moderator" mean?

I have a question about feeding tubes. My PALS was diagnosed 18 months ago and has been on a BiPAP 24/7 for over 1 year. I don't know what his FVC (I think that's the correct term) is but I expect it is not good. Is he still eligible to get a feeding tube? His speech and ability to swallow had...

I have a question about PEG tubes. My PALS was diagnosed 18 months ago and has been on a BiPAP 24/7 for over 1 year. I don't know what his FVC (I think that's the correct term) is but I expect it is not good. Is he still eligible to get a feeding tube? His speech and ability to swallow had...

Hi, my PALS has lost all mobility and is on a bPAP 24/7. His night time mask prohibits him from speaking. When he needs assistance he was using a call button on his portable phones but now has lost the ability to do that. Is anyone in a similar situation and using some kind of intercom...

Thank you all for your quick responses - some very good advice! We're learning everyday with this awful disease. Hopefully one day I will be of some help to an ALS caregiver. Good luck on your journeys and much thanks again.

Hi. I'm new to the forum and hope that someone will have some advice. My PALS is having a lot of difficulty getting comfortable in bed. We have tried two different hospital beds but neither have worked out so well. He has virtually no ability to move on his own except some movement in his...