Search results for query: *

Well it is official. My dad saw Dr. Bedlack at Duke. Got an eariert appt after being on wait list. It is ALS. So many emotions going through all of our heads. He qualifies for drug trials. Next appt will determine which one. Has great lung function right now. Still golfing. My parents...

Thank you all! I am praying for a miracle but also planning for the worst. Luckily, my dad had been contemplating retirement. I know if we get the diagnosis of ALS he will retire. He will not talk about ALS as a possibility to my mom either. My mom and I are just preparing together. I hate it...

I talked to Duke. They are so helpful! I am currently trying to convince my father to get a swallow study done at his local neuro. He initially declined because he thought it was speech therapy. Felt he didn't need it. I explained how they take pics of his throat and swallowing. Also, he...

My dad is not saying "ALS" at all yet. It's the elephant in the room. I will definitely be making calls in the morning. Bulbar onset is in the back of my mind. He definitely wants to be seen at Duke. He was told Dr. Bedlack is one of the best for MG. He is having to watch what he eats because...

Thank you for the info. His appt was actually upped from an April date. We are very concerned with nighttime coughing jags but he also has a cold which is worsening his swallowing etc. Very scary waiting period. Limbs are good though!

The appt is with Duke ALS Clinic. He has seen his local Neuro in NC who has referred him to Duke. MRI was clear no stroke and no MS. His symptoms are characteristic of MG and bulbar onset ALS. Mainly problems with slurred speech and swallowing. Can only eat certain foods.

Thank you! We will do our best to try and get him seen sooner. His symptoms are definitely not improving.

My father just got his appointment scheduled for testing the end of Feb. We are concerned it is so far away. Is this normal? His symptoms are worsening. Swallowing and chewing food are getting more difficult. Need advice.