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    thank you, Joni. I just saw on your profile that your husband was diagnosed in October of...

    thank you, Joni. I just saw on your profile that your husband was diagnosed in October of 2010. That is the same month and year my husband was diagnosed. it was October 13th, 2010. I remember clearly the day. I felt like the life had been sucked right out of me. I was numb for about a...
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    Helen, thank you for your nice message. everyone on this website is so kind. Are you a...

    Helen, thank you for your nice message. everyone on this website is so kind. Are you a caregiver for a spouse? You seem very confident about yourself, and I admire that. I am a worrier, is why I'm always looking ahead and thinking of ways to be proactive. I do have a strong faith, that has...
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    lms9258, thanks for the email. I'm not sure how to start a thread. will it help me? I am...

    lms9258, thanks for the email. I'm not sure how to start a thread. will it help me? I am managing okay, but get exhausted. I so look forward to saturday mornings or even friday nights because I don't have to get things ready for work the next morning and can sleep in a little. I wake my...
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    Joni, You are such an inspiration. Thank you for the message. I do not have too much help. A...

    Joni, You are such an inspiration. Thank you for the message. I do not have too much help. A friend stops by 2days a week and does some of the arm exercises with my husband, John. This is to keep his range of motion. they highly recommend it. Other than that, I pretty much do everything...
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    Brooksea, Thanks for your reply. That is a lot of encouragement hearing of your hardships. I...

    Brooksea, Thanks for your reply. That is a lot of encouragement hearing of your hardships. I am sorry about your loss of your husband. I especially feel bad about your son losing his father. My daughter is 22, but still it would be very difficult for her. Your son is so young. Is he...
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    Hello Brooksea. Are you a caregiver for someone with ALS? I can't remember if I read...

    Hello Brooksea. Are you a caregiver for someone with ALS? I can't remember if I read anything on your site. As I've been telling some others, I'm very new to this posting thing and not sure how to respond. I like to spend a little bit of time in the evening when I am not too sleepy to...
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    Helen, thank you for your message. I am new to this and not sure how to see messages I get. I...

    Helen, thank you for your message. I am new to this and not sure how to see messages I get. I just happened to click on the User CP and it showed numerous messages. I didn't even know I had them. It's nice knowing there are people out there who care about me. I've never, ever sought out...
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    My wife's crying and sadness with ALS is getting to me

    Hello Hangingon1 (you must have a name). I am very new to this posting and this website and not familiar yet with how this all works. I was not aware you were banned from the website. I was sorry to hear that and glad you are back and have received some help. I can see we all need help, and...
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    My wife's crying and sadness with ALS is getting to me

    Hello Hangingon1 How is your wife doing? I think she has had ALS about a year longer than my husband, and it terrifies me that I may someday be going through the same thing. i do have a strong faith, and am leaving everything in God's Hands. I don't have any help right now and do work a full...
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    Hi Joni, Thank you for your message. It's so nice to hear from someone who is experiencing the...

    Hi Joni, Thank you for your message. It's so nice to hear from someone who is experiencing the same issues. Others just don't understand. I, too, am exhausted. I work a full-time job and am the sole care giver to my husband. we have one daughter, Christina. She is 22 and a school teacher...
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