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Hi Helen- Met Dr Chad today- he performed my needle EMG. What a lovely DR. very kind. I also like Dr Fridman who I saw last week- she is young and gave me a very comprehensive exam. No indication from either Dr. whether exam/Emg were normal or abnormal. Have a follow up appt. on May 3rd. For...

Hi Helen- Just wanted you to know that I got a call from MGH they moved my appt up to this wed on the 4th from June 26th- its not with Dr Chad but Dr. Freidman. I am just grateful its sooner rather than later. Not a good day today- arms and legs feel like a 1000lbs. started with cold in chest...

Hi Helen- heard from Dr. Chad's office today. He can't see me until June 26th. Also heard from Dr. Venna the other MD that was recommended- he is booking for August! so took the June appointment. I guess if he can tell me what is wrong or not wrong with me then it will be worth the wait...

Hi Helen- Just wanted to let you know that I am trying to get an appointment with Dr. Chad. The Neurosurgeon ruled out my neck as being my issue and is recommending further diagnostic testing, updated MRI of head, since they were done a year ago when I started all this, and spinal tap. I do not...

Had my appointment with the neurosurgeon today at MGH. He ruled out that my neck is not the issue. Spine is fine. So wore a cervical collar for 10 weeks for no reason. He was a wonderful evaluator spent an hour and a half examining me, reviewing every head MRI and Neck MRI twice. He said that...

Thank you everone for your well wishes- you all have given me comfort during this frustrating time- here's hoping that I get some answers or direction tomorow. Bless you all!

Thank you both for sharing your journeys with me- I can't even imagine another year of doctor visits , MRI 's with no answers- I am sorry you both have had such long journeys, I feel guilty whining about a year of this. Not that I am glad that you both have similar symptoms than I, because I...

Thanks Helen - I'm seeing a Dr. Wilkinson- he is out of the neurosurgery department- they tell me he just does evaluations- he does not operate anymore- he recommends treatments, does not prescribe, and doesn't see you in follow up- so I guess he will determine where I go next- I am hoping that...

Have my first appointment at Mass General on Wed. the 7th- finally! I am not trying to put all my eggs in one baske. They set me up with a neurosurgeon evaluator who will make recommendations. My PCP / old neurologist are the ones who referred me to neurosurgery first, for what they feel is...

Night time is my enemy- once I stop for the day my muscles seem to seize up- spasms, twitching, and legs feel like they weigh a hundred pounds. I can only get about 3 hours of sleep-I have a constant vibration in my left foot. How do you explain the extreme exhaustion that I am feeling to the...