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  1. M

    Recent patent; treatment

    Well, I tracked down "Example/Patient #1" in this and her husband told me they thought this was helpful, but due to the cost, the insurance company would no longer pay for treatments. Just curious if anyone has seen/heard/tried this...? Thanks. Mike
  2. M

    Recent patent; treatment

    Has anyone seen or tried this...? Sorry for the extensive length. Hope I didn't break any rules by copying/pasting it on here. http://www.wipo.int/pctdb/en/wo.jsp?WO=2008021970 Thanks. Mike TREATMENT OF MOTOR NEURON DISEASE, INCLUDING CERTAIN NEUROLOGICAL DISORDERS, MOTOR NEUROPATHIES...
    • mikej2323
    • Thread
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    • Replies: 2
    • Forum: General discussion about ALS/MND
  3. M

    pro-inflammatory cytokines

    Well, I'm guessing/hoping some did get tested. Many ALS research articles discuss it, so I'm thinking there are results out there somewhere. Mike
  4. M

    pro-inflammatory cytokines

    Patricia- I think it is helpful to find out this information as it could lead to beneficial outcomes...which is one of the reasons forums like this is for. I appreciate all of your replies, but I think I may not have explained myself well enough. I'm not so much looking for the answer of what...
  5. M

    pro-inflammatory cytokines

    Well, here are just a few research abstracts that suggest that certain cytokines and TNF-alpha play a role in neurodegeneration...
  6. M

    pro-inflammatory cytokines

    But, in your experiences and with your research, they are and do remain high, correct? Mike [email protected]
  7. M

    pro-inflammatory cytokines

    I am curious as to the pro-inflammatory cytokines (IL-6) and TNF-alpha response PALS have had? I have read that these inflammatory markers are abnormal (high; stay high) in those with ALS. Thoughts...? Mike [email protected]
  8. M

    EMG conduction block and acetylcholine antibodies

    Well, I wasn't trying to correlate conduction block and diminished reflexes- sorry if it sounded that way. Interesting study you posted, however, it is just one study and it was 20 years ago...do you know of any more? It seems strange that an 11-year old identical twin goes from playing sports...
  9. M

    EMG conduction block and acetylcholine antibodies

    Nope, I have not been diagnosed with ALS. My 11-year old niece (identical twin) two years ago, began having shoulder and arm weakness. This progressed to decreased arm function and eventually a foot drop. This then went to the other side. She is now on a ventilator. I'm just searching for...
  10. M

    EMG conduction block and acetylcholine antibodies

    Well, it seems odd- I've read the majority of PALS do not have a conduction block and do not test positive for acetylcholine antibodies. Also, don't PALS have primarily "brisk" reflexes? Mike [email protected]
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