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  • Users: Jaloca
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  1. J

    My Dad

    My precious Dad passed away at 9:40pm on June 2, 2012. 6 months to the day from his ALS/FTD diagnosis. His last visit to the ALS clinic was May 24 at which time they felt it was too soon to recommend him for palliative care. The day before he passed he was walking on his own and enjoyed not 1...
    • Jaloca
    • Thread
    • abdominal als children clinic dad diagnosis ftd hours life night pain palliative care
    • Replies: 23
    • Forum: In memory of
  2. J

    Clinic visit

    Tomorrow we have a clinic visit. Due to the FTD and subsequent denial of his condition, I was wondering what questions we need to ask. We have seen quite a decline since his last visit in Feb. Dad has difficulty lifting his head off his chest, his breathing is poor (it was 56% in Feb) and he is...
  3. J

    Swift decline?

    My dad was given the dual ALS/FTD diagnosis in Nov 2011. He has had hunched shoulders for the last couple years prior to his diagnosis however over the last two days he can barely hold his head up. He is bent over and his chin touches his chest. Is it usual for muscles to decline virtually...
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