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:shock:well, it was a group effort. he forgot to lock the controls. somehow it was set on max speed. the controls were on the arm that we lifted to make my transfer. john was lifting my legs and my son lifted my shoulders and hit the joystick. the chair did a wheelie across the room pinned him...

I got the call today and was shedding tears of joy. $1500 for home care and respite. It is for those needing costodial care and have no coverage for such. this came at the best time for us as john injured himself caring for me. Janet

My husband is my cALS and I want him to be involved in the forum. Can he have his own name and password or does he have to use mine? Janet

I have not problems other than a weaker cough, but she thinks I should get on to use if needed. I went to the official web site and it seem that it could be helpful down the line. Anybody here using or have input on the vest? I do not know what a cough assist is nor when it would be needed snd...

I have some shortness of breath with exertion, talking too much, etc. My fvc is 77%. My cough is weaker. A few days ago I noticed when I wear my tlso that my breathing felt much better, less shortness of breath. I guess it is because of the abdomenal muscles. If this is so, I have a nice lyra...

Well my weak shoulders are giving out. My right shoulder esp, can't brush hair, trouble eating, holding up the arm. Some motions I can still do like circling my arm to the top of my head or object I need to lift, but straight on and my arm flops down. hands wrist forearms working fine, but...

My neuro/muscular doc has turned me over to ALSA for follow up care, appt next week. I understand now why there are so many questions, as I had an intellectual discussion about MNS even brought my husband and my head is still spinning. I am sure my questions will be answered when I meet with...

:twisted:My wheel chair does not fit through my bathroom doorways so I use a commode at home. Most times my lewgs will allow me to transerfer. If I go to a handicapped toilet, I bring a seat that fits over the toilet and raises me up. So far so good, but when I am at my friends house due to my...

I saw my primary neuromuscular doctor today for an eval and a really long discussion of where I am at. Basically she said I can't be called PMA until 2+ years of LMN symptoms from when they first started. I will be 2 yrs in Sept. I do have a mild hyperreflexia that I've had from my first eval...

I would like to hear from others with this disease. I am in need of hopeful or positive input. I know this may be reaching to far. I know what I am facing and I am devastated. I am trying to hold it together for the sake of my husband who is in tears. I am 63 married with my only son at home...