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  1. lovedbygoldens

    I thought I was ready...

    I thought I was mentally prepared to come over to this section but now I am not so sure. I am so relieved my mom is no longer suffering but I don't think it has hit me yet that she is actually gone. That I can't text her, go visit, trim her nails or pluck her eyebrows. :'(
  2. lovedbygoldens

    My mommy is singing with the angels

    My mom passed away peacefully today at 12:30pm CST. She was comfortable and the very end came swiftly. May she rest in peace and sing and dance with all her friends and family (including my dad) now that her spirit is free. Thank you for all your prayers, thoughts, kind words and comfort. I...
  3. lovedbygoldens

    The end is near.

    My mom's end to this terrible suffering is very near. Hospice as of this past Sunday is now coming daily and has informed us she is within days to a week. She is no longer communicative, rests her eyes the majority of the time, has decreased O2 and urine output however is able to still hear...
  4. lovedbygoldens

    I rant so now I rave...

    I used this to rant the other day and so in the order of balance, I now rave.... I want to compliment, praise and rave about what an excellant job my mom's husband does being her primary CAL. (I am sure most of you may wonder why I do not refer to him as "stepdad". Without going in to the...
  5. lovedbygoldens

    How much does it take

    before I can't handle this any longer? My mother is dying from an incurrable disease and my marriage is crumbling and in shambles. Anything else want to fall apart now, too? When is enough enough and our cross to bear become to heavy?
  6. lovedbygoldens

    Lessons Learned

    We have found out through this process that there is definetly an order to things when working with insurances and hospice. Please get EVERYTHING gadget, tool, assisted device you need or think you will need prior to enrolling with hospice. Once hospice starts (and I do encourage as they have...
  7. lovedbygoldens

    Okay, time for the tough question...

    What happens next? We had mom's ALS clinic appointment yesterday. All in all no surprises but we all walked away confused and lost so I am turning to you for your input. Mom has been using bi-pap and O2 at least 23 hours a day. She is only off long enough for transfers (pwc, bed, toilet...
  8. lovedbygoldens

    Would love your ideas...

    We are putting together our ALS walk team for my Mom. We had a team last year but this year we want to step it up. My sister and I are working to organize 3 fundraisers but first need a great team name! Mom's name is Sharyn so we'd like to incorporate it and she was a hair dresser for over 30...
  9. lovedbygoldens

    Update on mi madre

    Just thought I would share the update from Mom's ALS Clinic visit yesterday. Background: Diagnosed and confirmed (FVC 77%): 03/06/2011 Bi-Pap and (all the meds and vitamins): 03/2011 PEG placed: 06/2011 Full time in Power Chair: Fall 2011 Full PEG feed: 12/2011 Hospice and morphine &...
  10. lovedbygoldens

    A lesson I learned as a child...

    A lesson I learned as a young child was if you don't have anything nice to say, don't say anything at all & treat those as you want to be treated. I wish throughout my life I consistently took this high road. I have not and for that I'm sorry. I am very disappointed in the way some of the...
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