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    Advocacy Request

    2 More sent. I sent mine to Mark Pryor and John Bozeman for Arkansas. i wonder if I could send it to the Louisiana ones as that was where my mother lived before she lost her battle to ALS? Keep it going!
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    question about transferring patient w/ feeding tube

    NWA help Hello, Sorry about your mom and this journey you are both on. Are you a memeber of the support group in Arkansas? We meet usually the third Monday of the month, and they are a great and informative group. If you wish, e-mail me and I can connect you to them. Betweeen this forum...
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    How to cope?

    Find a cause. Hello Jessica, Like ShellShell, I also had a mother with upper bulbar ALS. She was diagnosed February 2007 and passed away 09/2008. Mom was 75, and stubborn, and I really did not get that trait from her. We live 600 miles away, and had great doubts of the sibling who stayed...
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    My Dad; My Hero...

    Sorry for your loss! Michelle, I am sorry to hear about your loss, but know that he is still with you daily. And he always will be. ALS is not kind, but it does offer us a unique way to make sure that our loved ones know who we are, and just what we feel for them. And they get the chance to...
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    Update on Mom

    Hello, I know I do not post alot on here, but both my husband and I have spent hours reading others posts. We live 600 miles from mom who was diagnosed with Upper Bulbar ALS February 2007. She soon lost her ability to speak, and had trouble swallowing food, especially her favorite, steak and...
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    Hello.. I need Support

    here are my 2 cents of support Hello, So sorry you are having to deal with "the monster". Yes we refer to ALS as "the monster". He will kill all hope and faith in yourself and humanity if you let him win. My mom at 74 was diagnosed with ALS in February 2007. My husband and I sough all...
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    HAPPY BIRTHDAY Al

    Happy Birthday Happy Birthday, As special as you are to the success of this forum, I know you will have a great day. Thank you for all you do, and enjoy your day! Bellard
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    If anyone is on please reach out to my posts I am at the bottom and need to get up

    Hello, I can relate to your frustration, but even more so, because I live 600 miles from my 74 year old mother, who is fighting her diagnosis for all she is worth. And she surrounds herself with children, who are willing to either support her fight, or take her to the invalid extreme. And...
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    I just found out my Mom has ALS

    Welcome. Hi April, I also found out February 2007 that mom had ALS. I live 600 miles away, and attend every support group meeting I can. I spend lots of time reading this forum, searching on the internet, reading books, discussing options with my husband and other people. Sometimes, I even...
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    Bladder Control Issues?

    Mom Too? Hello, My 74 year old mother was having slight issues with that when we went to get confirmation of DX in february. She told me about it when she was telling me about the Phone interview. When we got there, they found she had a uninary trach infection. I am told now, that she does...
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