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  1. P

    My neurologist thinks I have MG instead of ALS

    Shatzie - Sooo happy for you! I have always followed you because you sound a lot like me. CONGRATULATIONS! I hope someone gives me similiar news. Keep us posted, Gina
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    Now I'm scared

    Al, Sorry! I assumed that you start with www but you dont on this site. It is http://neuromuscular.wustl.edu That one should work. Gina
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    MRI Scan result

    Cerrebellar atrophy can be seen in Multiple System Atrophy which shares many symptoms with ALS. What did the neuro say?
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    Now I'm scared

    Wright, Many things cause fasciculations including caffeine, stress, thyroid conditions, low magnesium, nerve compression, excercise, tension, neuropathy, numerous medications. One of the charecteristics of benign fasciculation syndrome are fasics that affect the same site repetitively. Also...
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    Update On Hubby

    Lori, Did the Dr. mention anything about his blood sugar being high? Does he have a fruity smell to his breath? The biopsy results along with the nausea/vomiting are really pointing toward a metabolic pathway for me. hyperglycemia which can occur as a result of impaired glycogen storage and...
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    Update On Hubby

    Hi! The PAS is Glycogen storage excess. The ORO is Oil Red O also called Sudan Black for the dye they use, and is related to lipid storage. There are many disorders with excess PAS including Acid Maltase deficiency (Battens disease) and mitochondrial myopathies. hopefully this turns out to be...
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    My neuro vist & biopsy result

    Wright, I think you are very knowledgble but you may be incorrect on this one. With neurogenic or denervation atrophy, The denervated myofibers become smaller and more angular , but otherwise remain intact. The cross striation usually persists until very late in the process. Since a single...
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    My neuro vist & biopsy result

    April, I know that scattered atrophic fibres are a common biopsy finding with charcot marie tooth disease (chronic motor/sensory neuropathy). I have a lot of research concerning muscle histology. Do you know if the muscle fibers were round or angulated? Gina
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    My neuro vist & biopsy result

    April, I know EXACTLY how you feel. My neuromuscular doc said that at least 10% of the patients a neuro will see have valid neuro symptoms and abnormal exams and still never get a diagnosis. Its such a complex science. Thats frustrating for those pts (like you and me) but I think the ones...
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    Back again- need unbiased opinions

    Wright, from everything I've read and the neuro resident (not the attending) I would have decreased or absent reflexes with polyneuropathy. I've read one or two case studies of CIDP with brisk reflexes but from what I gather, very, very rare. Your thoughts? thanks, gina
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