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  1. P

    Swolen Feet

    Since being diagnosed with ALS six months ago, I have developed swolen feet. They make it almost impossible to sleep at night. Would appreciate hearing from anyone who has the same problem. What is the cause, and what can be done about it.
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    Stair Glide

    Thanks for the advice. Looks like the stair glide is an expensive short term solution. Unfortunately we have a u shaped staircase. Lifts, etc don't work. Chair elevators are very expensive. We don't want to move. We may simply make our second floor where I reside. Pat4t
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    Stair Glide

    I live in a two story home and am starting to have difficulty with stairs. I have been advised that I should have a stair glide installed in my home. They are very costly. Others caution me that I may only be able to use it for a short time. Can anyone tell me what there experience with...
  4. P

    Watching my sister die

    Sorry to hear about your Sister. I have ALS. The facilities here in Ottawa are very good. Get in touch with the Ontario ALS Society they will offer you a lot of support. I cope with ALS by living one day at a time. Like your sister I am loosing many physical things. At the same time...
  5. P

    Diagnosed 30 Sept

    Hi Shawn Sorry to hear about your diagnosis I also was recently diagnosed. My ALS is mostly in my limbs, particularly legs. Lets both of us live on day at a time and make the most of what we have
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    Newsletter

    Hi Ted Thanks for the article in the newsletter. We must concentrate on what we have not what we have lost. You obviously have had your experience of life enhanced by the disease and make sure that you make the most of every single day. You treasure time with loved ones and friends I salute...
  7. P

    A Newby on The Bus

    HI Bill Like you I have been on the bus a short time. Mine is in my legs and arms so far. Although this is a terrible disease, we have to hope that things will work out for us. I am not sure how that will happen, but I choose to believe it will and that allows me to live one day at a time...
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    Hi Ted Sorry I am so slow to get back to you. Am still learning the ropes with chat groups. My...

    Hi Ted Sorry I am so slow to get back to you. Am still learning the ropes with chat groups. My email is [email protected]. If you have some time would appreciate hearing from you. Pat
  9. P

    Thanks for the message. Am still trying to find out how to send messages, contact people. Hope...

    Thanks for the message. Am still trying to find out how to send messages, contact people. Hope you receive this
  10. P

    New Guy

    Hi everybody. I am Pat4t from Ottawa ON Canada, aged 75. Was just diagnosed a week ago. I have drop foot and my left arm and hand are becoming weak. Have had a couple of falls. I have a strong belief in a Higher Power who I hope will sustain and look after me going forward. Without that belief I...
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