7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap.
If it was just us, I'd probably suck it...
Its been so long that its hard to remember. She lost the ability to stand about 6 yrs ago, and probably all movement except her neck and head about 4 1/2 yrs ago. She mostly just goes form bed to recliner via Hoyer Lift now. Her breathing is definitely affected, but her O2 levels stay good...
Been dealing with a lot of this just lately. My wife is 44 and we've been dealing with this for 7 1/2 years.
I love my wife, and want the whatever is best for her, but I hate that my life is passing me by and I hate that our kids are growing up with nothing but a half of me (or less) and a...
Hi Megan. Welcome. So sorry to hear about your husband. My wife was also diagnosed young (37). That was 3 1/2 years ago. It's a struggle and a constant readjustment of what you think of as normal, but it can be done, and with a little positivity it can even be a rewarding experience, helping...
This seems as good a place as any to ask. Has anyone here ever heard of a PALS getting a colostomy bag? My wife has not stood or pivoted for over 3 yrs now, and every time she needs to go it is Hoyer to commode (in the living room). We can occasionally get out for a few hours at a time, but...
We don't have that exact brand or model, but its still the same machine. My wife hasn't stood for 6-8 months now and we use ours for recliner-chair, chair-bed, chair-commode for every transfer we do. 10-20 times a day as well. we have several different slings we use for different manuvers...
We went 3 or 4 times, and while I felt I was learning new things that could help along the way, my wife felt it was too depressing and time consuming. 3 hour drive + overnight in a hotel (probably impossible now that she is 100% Hoyer) + Meals + 2 days of lost work time.
In the end she...
Hey Kim, sorry I haven't been returning messages very well lately. If I don't reply the instant I get a message, I just seem to forget about it altogether. My wife is unable to stand anymore, and her left arm has been all but useless for about a year or better now. Her right arm isn't much...