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    George home with the lord

    Dear dear friends of als forum: On monday, june 22, george no longer battles the disease of als. He went home to be with his lord. No more breathing problems, he can now dance, play his bass, lift his riley girl high above his head and throw a ball to his connor. They were his joy. He was...
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    CVS for ALS

    Beginning today, June 7 until June 27 CVS Pharmacy will be asking customers if they would like to donate $1, when using debit or credit card. Hopefully, this will be successful in collecting huge funds for research. Just a heads up to all in USA. Wanted to post this on general forum also...
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    on tv now!

    Oh my goodness, I wanted to post for forum and not just PMA section but I am clueless. Anyway, channel 10, Kathy and Hoda Show today, live, a woman who has lived 35 years with ALS. It is on now and she will be speaking or representative. If this does not get on forum, I will post back and...
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    Has anyone heard from Mark?

    A few months ago, Mark, on the PMA forum, had posted that he was going in for trach/vent. If I missed his posts since surgery, could you let me know where they are. When I started on site, he seemed to be the PAL that was closest to the symptoms my husband was experiencing. If you, Mark...
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    Bipap Good News!

    My husband had his ALS clinic visit today and the respiratory therapist told us she has treated two patients that were on their bipap for over 13 years. George is on his bipap 24/7. His FVC's were 18% today. We both found that very encouraging, as his bipap is meeting all his breathing needs...
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    ALS postage stamp?

    Was in the post office and saw the Breast Cancer stamps that sell for 45 cents, giving 3 cents a stamp for Breast Cancer Research. Wondering if anyone knows how would I go about inquiring about a postage stamp for ALS research. Imagine all the money from everyone that has a friend, family...
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    Social Security/Medicare Woes!

    Well, first the good news: My husband received his "award notice" (that is how they label it, award notice!) that his disability is approved. He will receive his first "award" check by December 10, direct deposit, no retro in NJ. And his employer did not contribute to state so nothing until...
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    Anyone not have rx plan for Rilutek?

    Hi all I have a question. Those that are taking Rilutek, are you covered by an Rx plan or does anyone have to pay for this drug? Please let me know. Thanks! :-D
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    Hospice suggested

    My husbands last ALS clinic visit, his doctor suggested getting Hospice started. His Vital Capacity number was at 24%. He is using the bipap machine when home more and of course all night for sleeping. The doctor said Hospice is very helpful and not just for critical times but some...
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    All well meaning suggestions/acupuncture

    Was wondering how to handle all the people that have been suggesting so very much to George to get well! ALL WELLING MEANING OF COURSE. The other day, a Chinese doctor called us who is friends with someone my husband comes in contact with, suggesting acupuncture, herbs, and holistic cures...
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