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Dear Ms Pie, I don't know how to "friend" you on this site! In fact, I can't even figure out how to post a question! Thanks for your friend request! Barbi

Just proofed my message and found so many typos! I have the bulbar type of als. Speech totally unintelligible.

Hi There and thanks for the nice message. I haven't been checking in here so, I just got your message. I will think about coming to your next meeting, for sure. I was diagnosrd with ALS on June 24, 2010. I hve the bulnar type and although I can still walk and use my hands, the breathing is...

He WILL be overwhelmed at times, and will need to develop a support network to pitch in. Many of the things you mention can be done by a helper that you can hire for a couple hours here and there until you need more. You don't need a nurse, just a helper. Men typically have a hard time...

barbigirl1942 My blog which was started this past August. It is my way of being creative and speaking my truth.

Hi There, I live in Westminster! A brand new member, and I am hopeful that this forum will give me an opportunity to converse with those who are walking in the same mocassins as I am. Barbara

Thanks so much. It seems to be speeding up, actually. I have the bulbar onset type, and for almost a year all I noticed was speech issues, soon choking occassionally, and swallowing. Had a gastric tube placed in September and that has slowed me down a lot. Difficult to adjust to some of the...