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Sure hope someone from Vancouver Island, British Columbia reads my post. thanks to those who did reply. ALS society here not able to help; local hospice can't help. $$ not the problem because we do have funding for home care. It is just the level of help he needs ; he is fully vented and...

Hi, long story short.....my brother is home. He was (is) the only ALS person still mobile fully vented and with feeding tube. So we got to take him home after his trache surgery. His energy, after 9 mmonths, has bottomed out. He can still get in and out of bed and use his walker but after...