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  1. K

    How do I sign for my PAL?

    I also use a stamp. If it's electronic, somebody else signs my name
  2. K

    Problem with Urinary Catheter, and Bladder-spasms while on amphetamines

    Are you sure your BiPap settings are still good?...they may need to be adjusted if your diaphragm got weaker lately. Have you done a sleepstudy with your BiPap? What is your O2 and CO when you get tired? Karin
  3. K

    Problem with Urinary Catheter, and Bladder-spasms while on amphetamines

    Hi, it sounds like the catheter is not draining the bladder properly. - I assume you make sure the cath is not bent/kinked? - how far is it in the bladder? Any chance it's in too far? What's your procedure for inserting it? Some ?: - how much leakage during spasm...a cup, a Tbsp? - any leaks...
  4. K

    Has anyone had pulmonary rehab?

    Al, which hospital did you go to?
  5. K

    Post things to cheer up people

    A man visits his elderly father in the nursing home. Just before bedtime, the nurse enters and gives the dad his medication: a little yellow pill and a (familiar looking) blue pill. After saying goodnight he stops at the nursing station, and asks the nurse: "I would just like to know what my...
  6. K

    Out of breath while speaking

    Your FVC is compared to what the FVC of an average person of your height, weight and sex would be = predicted FVC. That's why they need your height, weight and sex (and maybe age?). If your capacity is higher than the average, then it's more than 100%
  7. K

    First ALS Clinic visit

    Hi, if there's even the slightest possibility that it's MMN, you may want to ask about IVIG treatment. It helps for MMN, does nothing for ALS.
  8. K

    Hello I'm new

    Welcome I'm sorry you had to join the club.
  9. K

    Need some help/advice, catheters etc.

    Hi Roni, my nurse comes every 3-4 weeks. When you say next week...will that be at DR / urologist office or at home? Do they supply everything or do you have to get your own supplies?
  10. K

    Far Infrared Radiation (5µm to 20µm wavelength)

    If you click this link, you'll see they're trying it for all kinds of incurable diseases http://clinicaltrials.gov/ct2/results?recr=Open&spons=%22GAAD+Medical+Research+Institute+Inc.%22&spons_ex=Y Karin
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