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I am not new here but wish to re-introduce myself and my families story. Our ALS journey began with my maternal grandmother, whom did at 86 from ALS. My mom was diagnosed 5/2009 with ALS SOD1 and passed 5/2011. My eldest brother and I have different mysterious illnesses which stump the doctors...

My mom is from St. Paul, MN. Diagnosed two weeks ago. Maternal grandmother diagnosed in her eighties. I am from MN but currently live in Anthem, AZ. I'm guessing I have ALS too. Been struggling for five years. Angie in AZ

gotta go As I see it, you have three options. First, try the condom catheter, second, wear Depends, or third, wake up your wife. My MIL takes care of my FIL who has Parkinson's. They use the urinal 24/7. He is confined to a wheelchair. Personally, I'm looking on the bright side, At least you...

Similarities Hi Kim. I'm Angie. At this point we have a few things in common. I'm 41 and a mother of two, male 20 and female 14. My maternal grandmother died from ALS when in her eighties. After four years, I still don't have a diagnosis. I think it's PLS. I'm fortunate to live in a warm...

Ah the joys of sleeping My father in law has Parkinsons. My m-i-l bought sateen sheets and slippery shorts for him. When he rolls, he uses the whole bed and she justs pull him back to his side. I have unconfirmed PLS and I fall asleep in mid turn with my hand in the air. I have no idea how...

I keep stumping the neuro because of my pain. My neuro is finally sending me to a neuor muscle specialist at Barrows in AZ. My first complaint when this all began was pain and it still my main complaint. I take Darvocet or Precocet for the pain and I use Baclofen for the muscle spasms...

Capt Al, Keep the socks on. My husband had a double PE (Pulminary Embolism) Easter of 06 after he noticed swelling in his left leg. That would be the last thing you would want to add onto all the other ailments. Angie in AZ

I have lost the ability to grip the steering wheel with my left hand and I am right hand dominant. Everyone is different. I am going to miss the independence driving gave me. I find it difficult to remain positive when I am losing a piece of myself on a daily basis. Angie In AZ

Blizna Sounds familiar. I had that particular problem 2 years ago. I have been seeing an internist in my hometown for various reasons and saw him three weeks in a row and he could clearly the see the weakening in my left arm. I can't turn the steering wheel with it. ltr I'm strong the first time...

Mine started in my left leg and right arm. Loud noises also make me jump. I can still take the dogs for a walk but can't take my fourteen year old daughter shopping. BUMMER! Standing in one place is really hard on my legs. Angie in AZ