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    Do i have pls

    Brother Rock - My mom has PLS and was also diagnosed at the Cleveland Clinic. Her doctor was Kerry Levin, and i don't know if you mention which doctor you see, but if it's in the same practice/office as Dr. Levin, you're in good hands. PLS is only diagnosed (typically) when everything else has...
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    Progression at 2 years?

    LouLou - My mom's progression is slow. She can't tolerate the side effects of baclofen (affects her bladder muscles first - boo), and so she doesn't use it. But even when she was on it, she didn't feel much effect. As for the fasiculations in your legs - I learned from one of my mom's...
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    Strength, Spacicity...Progression

    Old Dog - That's how it happened with my mom. She too might have had symptoms for years, but went from walking mostly normally to very slurred speech and a full time walker over the course of about 6 months. And then she's remained about constant at that level for about 2 years now. It's such...
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    Strength, Spacicity...Progression

    To the original question - it does seem logical for your strength to still be good, but for your balance to be going. My mom has it, and with her, we've actually seen an increase in strength (due to working out) but her balance continues to get worse. She's uses a rolling walker all the time now.
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