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This seems like the best place for REAL answers, ideas that actually work and are practical. The last time he got out of the hospital and had PT and OT in they brought in foam tubing to put over forks and spoons .....this is 3 months after he had a stomach tube in and and stopped eating by...

My husband's first symptoms were shortness of breath and difficulty with fine motor skills in his hands. A year and a half later he has to use a walker (be in a wheelchair shortly), cannot use his hands to do anything, and cannot walk 2 feet without gasping for air. Yes, the progression and...

I've been reading the forums for a while now and finding relief that I'm not the only one feeling like I'm feeling! I'm happy to have finally gotten my activation code so I can now ask questions and join the discussions.