My heart breaks for Gails's family... what a warrior she was in her battle. I have my cureals bracelet upstairs and my family overseas have them as well. I have not posted too often since my mum's death in 2008 from ALS... but, Gail's strength and that of her husband, family and Barbie 4's...
Netty,
I'm so sorry to hear of Freddie's passing. My heart goes out to you, may your memories comfort you always. You and Freddie were such a great team.
xo paula
Hello to all the wonderful people on this forum ... special hello to you AL... I still wander in and about here... but, do not post that often. I thought I would share a bitterly sweet March 3rd story with you all!
On March 3rd, 2009... We marked the first anniversary of the passing of my mum...
Sandy,
It's just going to take time and however the holidays unfold... "it will just have to do for now!" That was my mantra during my mum's illness and it has stayed with me since her passing. While trying to cope with her illness and my family, I would just keep that phrase with me and I...
Fluid buildup can be very difficult to treat... the feeding tube will help if meds are needed to treat it. I wouldn't wait for a fever to show up. I noticed you are in Ontario... In the GTA we have a service called Medi-visit. It's an on-call Doctor service and they come to your home. The...
Hi Ronwv,
It's a shame to hear a doctor say something like that. Just curious.. is the doctor an ALS specialist? Most doctors familiar with ALS will explain the drug to you as pros and cons and let the patient with ALS make the decision. I don't think it's respectful for anyone to deny...