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My PC is an antivaxxer and recommends against getting any additional covid vaccinations. I've had the first three and plan to get a 4th this fall. Has anyone had adverse reactions to the covid vaccine, other than the usual slightly sore arm? My son and I both had covid a year ago; he is not...

Thank you. At the moment, I'm not dealing with hospice questions for myself, but for my former husband who is terminal with stage IV kidney cancer which has spread to his lungs and brain, as well as diabetes and congestive heart failure. The same information applies, so thanks again. Right...

I recently listened to two seminars sponsored in part by the Steve Gleason Foundation. The subject was Medicare-paid custodial care. The basics to qualify are: 1) a patient must be home bound. 2) must require professional medical care such as skilled nursing, speech therapy, or physical...

I'm starting a new thread to try to work out a bug in the system. I thought I've seen something recently about a study of PLS patients to attempt to learn why they have PLS rather than ALS. If there's not such a study, there should be.

I ran across an article recently that said Neudexta may improve swallowing, excess salivation, and even speech. Has anyone taken Neudexta and experienced improvement in speech? I did a search and found one post that mentioned alleviation of drooling and improved swallowing but did not...

I've asked this question before but want to see if anyone has new information. When I was going through the diagnostic process, the neuro I was seeing suggested genetic testing through the Athena Lab in the Boston area. (Think this lab has a new name now) The cost was about $35,000, so it was...

I'm having a problem with elevated heart rate. It's usually okay in the morning but gets up to 95 to 99 in the evening. My PCP has increased my B/P medication, and this has helped a little. The only times I am short of breath is when I am exerting myself--getting in and out of bed, getting...

Has anyone in the US undergone genetic recently? Sometime during the diagnostic process, one of the neurologists I saw suggested genetic testing. The cost, at that time, was prohibitive--$35,000 or more. This was probably about 2009. Has the cost of this testing come down?

At my last clinic visit, my neuro advised me to try increasing my Baclofen dosage. I have been taking 10 mg morning and evening, and she recommended doubling that amount. I seem to be sensitive to most medications and did not want to try such a substantial increase all at once. We agreed...

I just remembered that, many years ago, a person who claimed to be a warlock put a curse on me. Can we add this to our list of possible causes of this dreaded disease? (My attempt at humor for today)