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Toto, Thank you for your reply. I know I sound negative and skeptical. I'm sorry. It is not necessarily that I don't believe the neuro. I keep telling myself clean EMG, good clinical exam, no ALS. I just know how long it took many of you to get a diagnosis and how often I see "everyone is...

Hello, I haven't posted in awhile and I'm sure many of you wonder why I am now. It may be difficult to follow my situation since I don't post very often. But I am posting because I covet the advice and help from people who really know and from those who have been where I am. Also, I hope that...

Judy, Sorry it took me so long to reply. I went to a neuro in Little Rock. In the beginning they thought I might have MG or MS. This neuro did testing that he said ruled out those things. I began having other symptoms and his exam was not very thorough at all. So I asked for a referral to UAMS...

Judy, sorry to bother you. I noticed you live in Arkansas too. If you don't mind my asking, I was wondering what neurologist you go to. Is that where you got your diagnosis? I have been to two different neurologists in Little Rock and am still trying to find out what is going on with me. Thanks...

Alyoop, Thank you for your suggestion. I will write down my questions and try to get them answered. The neuro didn't note any clonus in the exam at the end of Nov. I wasn't having these types of problems then....so thought maybe it wouldn't show up in exam until now. But I will ask at my next...

Notme, I'm sorry my posts are so hard to read. At the very least I should do more spacing. I don't intend for them to be so long. I will try to do better next time. There was actually a post and discussion on here from a caregiver mentioning the problem her pals had with a runny nose when they...

Judy, This is the second neuro I have seen. I went to the first one because of a problem with my eye that suggested MG or MS. He tested me for both. Tests normal. I was beginning to experience other symptoms during this time but he did not pursue them. So I obtained a referral for a second...

Hello All, It has been awhile since I have posted. I didn't want to bother you all during the holidays and then I let the time get away from me. For any one who might be interested here's my update. I had my 2nd neuro appointment in mid Dec. when they did the nerve conduction study and the EMG...

Hello All, Well I had my neuro appt yesterday. I will have to say this neuro was soooo much better than the 1st one I saw. I wish I could have seen her in the beginning and I think I would be a lot further down this road by now. Anyway, she was very kind and caring and seemed attentive and...

Helen, Thanks for your reply. I did not actually have an EMG (unless that's the same as a nerve conduction study) Maybe I don't fully understand it. I thought he was going to do an EMG but he did nothing with needles into the muscles. The first neuro conducted the nerve conduction test. What...