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Hi All, Thanks for the many responses and for all the encouragement. We've just spent four nights in the ICU after a battle with a respiratory infection. He is back home and we are scheduled to move him into the skilled nursing facility at the VA tomorrow morning, so our nerves are frayed. I'm...

Hey all, Have only posted once or twice before. I'm the caregiver for my partner, Mike, who has been diagnosed since August 2011. He uses a power chair and a feeding tube (although he's fortunately still able to enjoy a beer every night), a sip and puff respirator as he needs, and we use a...

We have someone, too. Our aide is through an agency, and it was a humongous relief when we first got her. Trepidation about a stranger coming into the house is normal and they are used to that. Most aides are in this line of work because they are naturally caring, big-hearted people—if you have...

Late to the game here, but my husband is also a vet. The benefit set is quite good. You can also get a specially adapted housing grant (SAH) and the VA will do wheelchair adaptations to your house up to $62,000, although it takes over a year to find out if you are approved or not. We were...

Just wanted to write a quick update and tell you all that he is home and eating and drinking just fine! We learned a lot from this experience. It is so important to explain the individual patient's needs to those that will be caring for him/her, and that will go far in the future for helping...

Thank you for the responses. We are in the hospital now. He's been suffering a lot and I wish we could give him some kind of nutrition. They have finally allowed his Baclofen through the PEG (after I became quite "assertive"-- we actually had a doctor apologize to him, which I found pretty...

Hey all, Never posted here before although I haunt these posts all the time. My husband is a former U.S. Marine diagnosed with ALS in August of 2011 at the age of 28. He is still talking and walking around our accessible house with the help of a walker, and he still eats and drinks although...