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    Thank you Mike for your input, it certainly has been a bumpy ride so far. I have an appointment...

    Thank you Mike for your input, it certainly has been a bumpy ride so far. I have an appointment with yet another neurologist who specializes in rare or the more difficult neurological diseases so hopefully he will have some answers for me. I have new symptoms the past two weeks of being dizzy...
  2. F

    Rilutek?

    My EMG came out good, now more confused than ever. Keeping me on Rilutek for now but I am thinking of stopping it. Been sleeping better but only couple hours at a time.
  3. F

    Pos. EMG then Normal?

    Hello, I am a 43 yr. old woman who has been diagnosed with PLS, with pos emg. Symptoms are weakness and atrophy mainly on left side but right also in thighs and calves, left arm and wrist, hand not working(dropping everything and can't open things, cramping and spasms now spread to neck and...
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    Feeling alone and lonely

    I am new here and can relate to somewhat of what you are going through. I'm 43 been diagnosed with PLS first now two docs believe it to be ALS getting third opinion and have yet another emg scheduled. My ex husband moved back in with me to help with the kids and around house as I am unable to...
  5. F

    Rilutek?

    Hi, I am a 43 year old woman with PLS and now highly suspected ALS from two different neuros. I have been put on Riluket been taking for a month, not sure if I notice a difference. I do however have notice that I either have a lot of energy at certain times during the coarse of the week or...
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