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  1. BK2011

    Trying to stay positive

    VA has taken good care of me, hope your dad has the same experience. They will get your dad a wheel chair if he can use it. If they haven't already, he should ask them for one. If he's still mobile they'll supply a cane or a walker. He should have been given a 100% disability (ALS is one of...
  2. BK2011

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Wish you all a Happy New Year in spite of Covid and ALS. Bill
  3. BK2011

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Still here, just checking in.
  4. BK2011

    Numbness anyone?

    Thanks Nikki😃
  5. BK2011

    Numbness anyone?

    Sorry if I wasn’t clear, Nikki’s point is the one I was trying to make. Not every issue we have is linked to ALS. AL, was your question for MDNTCowby or me. I was diagnosed a long time ago at the Kessenich Family ALS Clinic at the University of Miami before ALS was presumed service...
  6. BK2011

    military strategy

    Found this in ALS News Today: “While those who served in the Persian Gulf War in 1991 have double the risk, according to a report from the Institute of Medicine, those who served in Vietnam, Korea, or World War II also have a higher risk of ALS”. “ According to the ALS Association, the risk is...
  7. BK2011

    Numbness anyone?

    Well, I have had some “tingling” sensation in my left hand. Feels like my hand went “to sleep” if you know what I mean. At the same time, my right forearm had a very uncomfortable burning sensation, my neck hurt (uncomfortable), and my shoulder blade hurt/burned (most uncomfortable symptom)...
  8. BK2011

    Decision Advice

    Tough decision surely. Folks at Shands are outstanding. My daughter spent more than a month there and we have only good things to say about everyone that cared for her while she was there. Bill
  9. BK2011

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Just checking in. Nothing new or interesting to report at my end. Have a good week.
  10. BK2011

    Decision Advice

    Kevin, I opted for surgery, granted I didn’t have a bowel resection, I had open heart surgery and my aortic valve replaced. Didn’t seem to speed up my ALS. ALS certainly slowed down my recovery but I did recover. For me it was a quality of life issue (you know “I’d rather die while I’m...
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