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My husband has been very good about just NOT driving. As when we investigated insurance issues , it seems that even if he were not at fault he could get blamed because of the ALS. He does miss getting up and going about doing boy things but has not been bitter about it. It is a loss of...

whew... I thought I was becoming a hypocondriac... or having sympathy pains for my husband. So there is some reality to this sense of having similar symptoms. Maybe it is stockholm syndrome of some sort. As a caregiver we have to learn so much in a short amount of time and are always...

Do you have any extended family or friends that could help with the scheduling part? I have learned that asking never hurts and it is not written that 'I" need to DO everything. that maybe the hardest lesson I have learned. As a wife I do everything, as a homemaker I do everything... as a...

oh sister you are singing to the choir here... I agree with the one post about it is his stomach etc... I do find thought that if my guy gets or is tired (exhausted) he is much less likely to eat. And just like a child start enticing him with goodies. The protein shakes help too... they are...

I was not sure where to post this but wanted to share some fellow caregiver support. I am the tiredest in the late afternoon, when the children were small it was called the aresnic hour. So here are my energy savers.... BBQ chickens are great, pick up at store, in our home we get three meals...

Thank you , each of you.. We have a great ALS society in BC and I am going to start utilizing them more for myself. We have a great medical team too. It always feels good when you know you are not the only one doing or feeling what you are feeling. The funny in this though is that at one...

I have written a list of things that people can do for us. Especially "normal" cleaning and keeping things. Outside and inside. Party be darned, I agree though that honesty is the best policy. Tell them NO... and tell them why it is hard for YOU to do. I was feeling like I was just...

I just found this site and it gives me some hope to type what I am not to good at verbalizing right now. Our changing roles are almost more to handle than the ALS. My husband has the ALS and we have only had confirmation since June although it seems that is when the slope got a whole lot...