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Re: A blanket of snow We are having to make these decisions now, so that Tom won't go into treatment that he doesn't/might not want. It's so heart wrenching! But, I know that he will go to be with God and his parents when he is ready. He doesn't want to be artificially prolonged as that is...

I have no idea of what to tell you. My BIL's step-father (I use this term loosely; mostly the butthead was married to my loving MIL who passed last September) doesn't do anything for Tom. They live in the same house and he NEVER asks if Tom needs a drink, ice, can of Jevity, etc. It's like if...

Daphne, my sincere condolences on the loss of your brother. Stress can do some really terrible things to the body. I hope your symptoms calm down in the next few weeks. Try deep breathing when you go to bed. Focus on something very pleasant that has nothing to do with your brother. Just try...

I hear you! I've been in the caregiver world for only a few months, but it might as well be longer. It's constant, overwhelming and maddening. Everyone who offered to help hasn't. We've had the people from the church try to tell Tom that if he just accepted Jesus into his heart, he'd be...

Goodness, Mary! The VA is a trip, isn't it? Is your husband a Gulf War Veteran? My husband is, and is having lots of neuro symptoms, but has been assured he does not have ALS, which was a relief. People keep asking me if my BIL, Tom, is a veteran, but alas, he is not. We are winging this...

Tom's voice and swallowing started to get bad, but he didn't go to the doctor until his left foot was going numb and ice cold. He went to a chiropractor first thinking he had pinched a nerve in his back. The chiropractor had an MRI done, but he didn't see anything wrong. Then, he went to a GP...

I'm not sure there is so much laziness going on as difficulty processing the situation? My brother-in-law was always a fairly thin guy, but is now fairly skeletal. He is getting better about eating, but for a while he just didn't want to. He made comments about "speeding the process". I...

Hi, Barbie, my name is Amy. My brother-in-law was diagnosed in April, but has symptoms for about 18-20 months before he was diagnosed. Your question about plateau is a good one. I have been wondering that myself. Tom has gone precipitously downhill in the last 10 months. I hope he can even...

Awwww, thanks. That's so sweet.

Tonight at the ER, the check-in nurse said, "So, besides the fever and the cough, do you have any other health concerns?" I said, "He has ALS," with a rather incredulous look on my face. It wouldn't be a dumb question on the nurse's part if we hadn't just been discussing the fact that Tom has...