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Hi Kate, Sorry been a while since you replied to my post but yes, if you have any info at all that might be helpful, I'd love to hear from you. [email protected]

Yeah, unfortunately you really can't hide the disease from them. There will come a time when your husband will require more attention and they'll notice. Like Barbie said, really, the only thing you can do it try to spend some one on one time with them. If you have someone who's able to help...

I'm so sorry for your loss ...

Thanks for your replies. We have used ALS association's respite care program and I should get in touch with them again. It comes up to about 20hrs in a 6 month period, which is nothing, but I guess 2 good nights sleep would be good. I use to have them come out for a few hours once a week but...

Hi everyone. I haven't been on in a really long time. Just hiding out l and trying to make the best of it. But I've reached my point of exhaustion. Mentally and physically. My question is , is there ANYTHING out there to help people who are dealing with ALS. I just don't understand how...

I'm so sorry, but whoever said get ready for these people everywhere is so right. It's unfortunate this happened at church, where of all places you should have received comfort and sympathy for sharing. But these types of people are everywhere (and usually the ones who will do anything for...

Oh my gosh Barbie, that is so awesome! I just recently got a break myself after 3 years. PALS brother cared for him for 5 days while I went to Tennessee to visit my sister (brought the little one and my mom along for help watching him) It was so great to get up in the morning and only worry...

I am so sorry :(

I know it may not feel like it but sounds like you have a pretty good routine. I know it's painful to hear someone say they feel neglected when you already feel like you've worn yourself thin trying to make everyone happy. My husband is very techie (?!) too and also spends a good deal of his...

My thoughts are with you. Big Hug. And how horrid of them to do that to you and taking the names you chose ?! Wow... people are really unbelievable sometimes.