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It is with intense sadness that I finally share that the greatest man to have ever graced us is gone. My soulmate passed on July 5th and I will be forever at a loss without him. I seriously don't know how to go on. Frederick Joseph Bustos Resident of San Ramon and Pinole The stars in the...

and for many insignificant reasons, I can't shake the feeling that we are nearing the end. I don't know if its all the little, overwhelming changes, my fear, my fatigue, all of the painful losses on this forum in the last few months.....I don't know. I'm just so.................sad.

Please join me in wishing Mair (Poppy62) a very Happy 50th Birthday, today. Mair, I wish you peace and the ability to see the beautiful, strong and loving woman in yourself that we all see. Cheers, Sweet Lady!

Hi there! It has been recommended that my husband begin to perform certain strengthening exercises to help him strengthen his hips and legs to prevent some falls. I've had the understanding that stretching exercises can be good but that strengthening exercises can contribute to further decline...

Hi everyone. My head is spinning! Our doctor has suggested that we go on Hospice. From what I've gathered here, entering Hospice is a sort of "forever hold your piece" proposition in that all equipment has to be obtained before you enter the program. We don't have anything short of a manual...

Riding for a fall: Pair with ALS set to skydive - ContraCostaTimes.com Article on two pALS Jumping for a Cure in my area. Inspirational and Awesome.

Hi Everyone.....long long story, but does anyone know if there is a certain Form that you have to file with the IRS that satisfies Section 72(m)(7) relating to the definition of disability? I need this for our attorney because my DHs ex-wife is trying to obtain all of his medical records and he...

Hello Everyone! We just got our suction machine delivered last night. Any tips or tricks? My pALS has an incredibly strong gag reflex and, of course, the second he got it, he shoved the stick thing (a medical term, I'm certain) so far back in his throat that he vomited. Now every time he...

Dilemma: When 1 Drug Treats 2 Diseases - WSJ.com Hoping that this is a link to the article in today's Wall Street Journal concerning off label drug use.

I'm reading through the drug trials, and I'm wondering, can our loved ones, with both ALS and FTD ever get into any of them? Are we considered so different, so hopeless, that we should just go home and wait for the journey to run it's course? I don't mean to sound macabre, it's just how I'm...