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  1. V

    My mom, my heart, is gone

    Mom snuck away silently while holding my hand. I don't know exactly how long she'd been gone when we finally noticed the bipap was the only thing breathing. No heart beat. Her face was immediately unrecognizable. She was just gone from this world. Gone from this pain. 51 years is just not long...
    • valoree
    • Thread
    • bed bipap breathing heart immediately love pain
    • Replies: 36
    • Forum: In memory of
  2. V

    ALS, pulmonary embolism and a two heart attacks?

    We are back at the hospital. Mom is septic from a severe UTI and mild aspiration pneumonia. The morphine she's been taking backed her up so we tried magcite to force a BM but she vomited instead and hasn't been right since. Less than 24 hours later and we are in the PCU again. Her EKG shows that...
  3. V

    ALS, pulmonary embolism and a two heart attacks?

    The House and vicodin thing was to make you laugh, but I mean it. I feel like, if I was a doctor looking at this woman who is so sick and missing key symptoms of ALS and showing various other systemic issues that I'd want to poke around a bit and solve the puzzle. Even if the solution is that...
  4. V

    Is this a pm? I'm not sure how to pm someone on here.

    Is this a pm? I'm not sure how to pm someone on here.
  5. V

    ALS, pulmonary embolism and a two heart attacks?

    When the embolisms happened mom hadn't been sedentary/bedridden for more than a week and a half, the doctors were skeptical that a week and a half would have been enough time to form such large clots. She showed thickness in her blood and has been on Warfarin since the embolisms happened and has...
  6. V

    ALS, pulmonary embolism and a two heart attacks?

    My mother is only 51, was an avid walker and a generally healthy person until she turned 50. She began with coldness in her fingers which was diagnosed as Reynaud's disorder, no big deal. Then she began to feel fatigue, trouble swallowing, trouble moving parts of her hands, thickening of the...
    • valoree
    • Thread
    • als als symptoms biopsy cold cramping diagnosed diagnosis driving emg family family history fatigue fingers heart hospice hours immune lung capacity muscle muscle biopsy neurologist pain problems progression questions reading risk scleroderma steroids swallowing symptoms tests treatments trouble swallowing twitching ultrasound walker
    • Replies: 15
    • Forum: Could this be ALS?
  7. V

    My young spouse has ALS, whats next?

    Hi Rob, My mom is 51 and is in basically the same place as your wife. I am 30 and can't even imagine facing my own mortality at this point. I'm so sorry. Mom was told she is at 22% lung capacity and she's opting out of a vent so we're looking at 6 months. She is on her biPAP 24/7 and she did...
  8. V

    Motor Neuron

    Yeah, I wish everyone had plenty of these. Forget "Make a Muscle," make a neuron and the muscles will take care of themselves.
  9. V

    Motor Neuron

    I just wanted to share the motor neuron tattoo I got over the New Year holiday. A healthy neuron of course. I wish my mom had a few more of these healthy neurons. :sad:
  10. V

    marriage trouble

    I could be wrong, but the MDA has all kinds of resources that might help you get out on your own and into a happier place/home. It's worth trying and the MDA is such a great place to start.
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