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I was diagnosed almost 4 years ago with PLS and have fallen several times. Thankfully I have not been seriously hurt. In the past 3 weeks I've fallen twice. Once when letting go of my walker for a minute to hug a little girl goodbye. As I bent over, I started to lose my balance so grabbed a...

I recently returned from a trip to Minnesota to see family & friends. The thought of traveling alone was a bit scary, but I decided it would be fine. After two weeks there, my friend (who I met on this forum and who has PLS) dropped me off at the airport. After saying goodbye and getting...

On Friday it will be one year since I had surgery to implant the Baclofen pump and catheter. All in all it has been very beneficial to me! After 3 months we were still working out the optimal dose, but once we found it, it went fine. I know when I need an increase as my legs and ankles start...

Here’s where I am at 3 years with my PLS: • 2009 o Started in left leg, then right (foot drag, falls) • 2011 – June – Diagnosed • 2012 o Started using a cane o Hands next –weakness and fist clenching at night – wear braces for this o Emotional lability (laughing and crying episodes) o...

Hi folks - I have made the decision to have the Baclofen pump surgery. Just two weeks from today I am having this done After 2 years of using oral Baclofen (which has helped the spasticity a lot) - I am just plain tired of being so tired and the other side effects it causes. My neuro told me...

I am interested in hearing how others handle episodes of extreme fatigue. Since being diagnosed almost 2 years ago, I find myself at times to totally run out of gas. I work full time still and get a good night's sleep each night. This past Thursday, I was so tired driving home from work - got...

I am scheduled for an EMG with my neuro on Tuesday to determine what is the main cause of my hand/arm/wrist pain and clenched fists at night. The fist clenching started in July and I now wear resting hand splints at night to keep my hands straight. Also take valium at night along with my night...

Hi folks, I've been having a hard time dealing with the latest symptoms which came on in early July. I posted at the time about my hands all of the sudden clenching at night. Since then I have seen my nurse and had appointments with the occupational therapist. So I've increased my Baclofen to...

This past week I have experienced something new. At night I wake up with one or both of my hands clenched in a tight fist and when I open it (them) a spasm begins. This lasts just a few seconds. Do any of you experience this? I'm worried that the PLS has spread into my hands. Most of my...

Since Tuesday this week, my legs have felt more stiff than they normally do. I have not done anything different. Do any of you have flare ups like this? This has happened to me before. Just wondering why it happens. Overuse? I was diagnosed last June. I did have a wonderful 45 minute leg...