Sorry I haven't been in touch but I was busy moving into an assisted living facility.
I moved in late Monday and missed their Thanksgiving dinner which they had on Monday. So no turkey, stuffing, sweet potatoes, cranberries, etc. And that is one of my favorite meals. Had to settle for an open...
Revealed end of episode. Supposed to be 18 months. Unrealistic no symptoms shown. Yet said death was nearing & asked her ex Rossi to help her go out on her own terms.
Wonder how they will follow up this plot point. Hope this wasn't a spoiler for anyone. Wonder if any show runners/writers has...
B*stard busted today. He damn well better not get a slap on the wrist. This is ALS group my area. And they are having big conference tomorrow. Makes me feel bad asking friends to support.
West PA Former ALS director arrested on charges of stealing $80,000
I am limb onset hands/arms but I guess bulbar onset may be starting? I go to 1st ALS clinic Thur. I called neuros office this morning. Person I need to speak to not in till 1. I want to make sure I see pulmonary. I had a couple episodes like this July but thought maybe just anxiety. Did mention...
I know everyone is different but I'm curious about how mine are felt as compared to others here.
During day when I sitting in office chair I rarely feel. Though late in afternoon mid back pain stiffness.
Worst at night in lounge chair. Fingers, upper arms, butt, quads. In bed sometimes at...
H'mmm having done handgun competition for 10 years. Now that's a thought. Hey get your final deer or bullseye. Holy Smokes is name. Saw story on USA Today website.
I just got diagnosed though I'm pissed at docs who drug this out in time between appts - asap is 7 weeks! They damn well better get on the ball now getting me in to their ALS clinic. I am going to look at UPMC clinic as well & inquire as to their drug trial
I've been doing some exercises -...
Yep tomorrow is my 59th BD and diagnosis today was ALS though doc is still hedging his bet with probable.
You all here have been a great help already and a virtual shoulder to cry on. I've been prepared for awhile for the ALS diagnosis & I think I'm moving on out of the funk to acceptance and...
Helluva birthday gift I'll probably get next week. My neurologist is doing leg emg on me Wed. I believe from what he's said & my progressing arm weakness/atrophy/functional loss & leg/foot gait problems this will just confirm the monster has invaded.
My 59th BD is Thur. Helluva gift.
Being...
ability
arm
arm weakness
atrophy
back
caregivers
depressed
depression
diagnosed
emg
family
fear
foot
meds
neurologist
problems
scared
symptoms
weakness