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    Checking in first four days in assisted living facility kind of sucks

    Sorry I haven't been in touch but I was busy moving into an assisted living facility. I moved in late Monday and missed their Thanksgiving dinner which they had on Monday. So no turkey, stuffing, sweet potatoes, cranberries, etc. And that is one of my favorite meals. Had to settle for an open...
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    TV show Criminal Minds 1st wife David Rossi has ALS

    Revealed end of episode. Supposed to be 18 months. Unrealistic no symptoms shown. Yet said death was nearing & asked her ex Rossi to help her go out on her own terms. Wonder how they will follow up this plot point. Hope this wasn't a spoiler for anyone. Wonder if any show runners/writers has...
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    West PA Former ALS director arrested on charges of stealing $80,000

    B*stard busted today. He damn well better not get a slap on the wrist. This is ALS group my area. And they are having big conference tomorrow. Makes me feel bad asking friends to support. West PA Former ALS director arrested on charges of stealing $80,000
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    Scary woke at 5 am feeling like having breathing problems

    I am limb onset hands/arms but I guess bulbar onset may be starting? I go to 1st ALS clinic Thur. I called neuros office this morning. Person I need to speak to not in till 1. I want to make sure I see pulmonary. I had a couple episodes like this July but thought maybe just anxiety. Did mention...
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    Fasciculations when are they worst for you-Newbie asking

    I know everyone is different but I'm curious about how mine are felt as compared to others here. During day when I sitting in office chair I rarely feel. Though late in afternoon mid back pain stiffness. Worst at night in lounge chair. Fingers, upper arms, butt, quads. In bed sometimes at...
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    hunters and shooters company loading loved ones ashes into ammo

    H'mmm having done handgun competition for 10 years. Now that's a thought. Hey get your final deer or bullseye. Holy Smokes is name. Saw story on USA Today website.
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    Exercises hands, arms, shoulders, legs

    I just got diagnosed though I'm pissed at docs who drug this out in time between appts - asap is 7 weeks! They damn well better get on the ball now getting me in to their ALS clinic. I am going to look at UPMC clinic as well & inquire as to their drug trial I've been doing some exercises -...
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    Any suggestions ebook/ipad holder bed table

    Appreciate what works for you on a bed or table.
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    Happy Friggin Birthday I'm joining the PALS club

    Yep tomorrow is my 59th BD and diagnosis today was ALS though doc is still hedging his bet with probable. You all here have been a great help already and a virtual shoulder to cry on. I've been prepared for awhile for the ALS diagnosis & I think I'm moving on out of the funk to acceptance and...
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    How to get past depression when diagnosed?

    Helluva birthday gift I'll probably get next week. My neurologist is doing leg emg on me Wed. I believe from what he's said & my progressing arm weakness/atrophy/functional loss & leg/foot gait problems this will just confirm the monster has invaded. My 59th BD is Thur. Helluva gift. Being...
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